What’s going on.
Can’t sleep. 2:46 a.m. In the hospital. So, what’s going on?
I’ve updated a few people via email, just seems more polite to update the closer few first…. Plus I’m not thinking all that straight. Here’s what’s been going on. Scroll if you’ve read this.
I don’t remember how much I’ve updated anyone, so scroll if you’re bored. Hank and I decided my breathing was too difficult to be home Thursday (Thanksgiving) night so we got to the ER at 12:30 Friday (note: no holiday in the ER). Got lots of tests, stayed overnight, and by 1:00 Friday(supposed to be 8 a.m, but who counts in hospitals?) got another 1 and 1/8 liter drawn off my lung. They wanted to put in a drain, but the drain doctor is gone for the holiday.
I also talked with the oncologist from my group and the radiologist. I told them I feel much much better after getting my lungs drained, but it is not taking care of the rapid heart rate, the shortness of breath, etc. I said, “Would you please look at my ankles?” They’re pretty darn swollen, as is my abdomen and — looks like I’m probably retaining water around my heart too. This can be taken care of with Lasix (however you spell it), so right now I started on that and they’re “monitoring my output” overnight right now — Friday night to Saturday morning. I told them I would not go home if I couldn’t walk up and down their hallway without getting short of breath and maybe even take on a stair or two since I have to deal with stairs at home.
The unfortunate thing about retaining water in your heart and lungs is that it’s a sign of congestive heart failure. This can kill you as you know. Or you can manage it. Since this all started less than a week ago, but came on very aggressively, it looks pretty bad and it’s likely caused by the adriamycin I had 6 years ago when I was first diagnosed. Needless to say this makes me mad, but it’s a Catch 22. It did keep me cancer free for 5 years, so extended my life in that way.
What we’re looking at next week is scans and possibly major lung surgery to stop the pleural edema. That surgery has about a 66% success rate. If it doesn’t work, well then it’s a drain tube for me until I die. Lots and lotsa fun, eh?
I’m still breathing heavily, though my heart rate (counted by me at this point because I’m not in the ER where the monitor it all the time, so not all that accurate) has gone down to 92 from 120. Again, highly not accurate. My ankles are slightly less swollen and my face looks a litle better. I really need a shower, but I just can’t imagine that kind of exertion even with all their little helps here at the hospital. We shall see what happens overnight. They might send me home tomorrow (hahahahaha) depending on medical rules. Given how I feel right at this moment, that would make another scary night for Hank and a rush back to the hospital some time Saturday or Sunday. Again, we shall see.
I have no idea what the immediate future holds, other than lots of doctors appointments and scans. I’d like to just stay in the hospital and make them come to me because I can’t get there from here. I mean, I know I will with help, but my goodness…. Help like a wheelchair is what I mean.
I have gone from fairly enabled to nearly completly disabled in a quick week. I might end up in the hospital for quite some time.
Please continue to pray as I know you do. Wisdom, strength, and good decisions.