Dr. Hope, Jr., called just a little while ago. He and the brain surgeon finally talked yesterday at 5:00 p.m. The brain guy had just (finally) finished talking with the gamma knife people and was (finally) convinced that what we’re looking at in my brain is some sort of imaging effect and worth scanning again, but not worth poking a hole in my head. Finally. And he (finally) agreed that it was a good thing I had canceled the surgery at noon based on my prayers, Hank’s prayers, your prayers and your advice.
Hank said, “These guys don’t know much, do they?” He is a master of understatement.
Anyway, I’ll be getting an MRI of the brain in early December to see what’s going on. It could still be bad news and I could still end up needing a brain biopsy, but no need to jump into this hastily.
On the Cyberknife front I am scheduled to start on Monday the 15th, though I don’t have the exact time yet. I have their phone number so I can call them tomorrow if they don’t get the time to me soon enough to make me happy. It will be three sessions and then I’m likely going to be very tired for a few days. The pain should start to reduce quickly, or so they say. Please pray that it does. It’s very bad right now, but I just have to hang on by my nails for 3.5 more days — an then 3 full days of treatment…. Sigh. At least it’s not going to go on forever.
Next week I’ll also be talking with the oncologist (chemo guy) about future treatment for my lungs. Who knows what’s going on there? I haven’t had the time or energy to really think through the options he presented, but I’m looking forward to running all this brain and spine stuff by him. He’s been out for a couple of weeks, but I’m sure he’ll be outraged on my behalf and probably dash out of the room to wave his arms about and yell at a few people on the phone. He has done this before. He’s a good person.
Meanwhile I hurt hurt hurt. Ouch. Serious ouch. We’re upping the steroids a bit because they do help with pain management, but they make me crazy. O am taking Decadron, which is an evil personality changing steroid. Many people call it Demondron. Nasty nasty nasty but necessary right now. I’m experiencing several of the “report immediately to your doctor” side effects (swollen ankles, swollen face, easy bruising, muscle weakness, depression, anxiety, lack of sleep…) and I have reported them, but there is absolutely nothing we can do right now. If I go off the steroids I would be in such great pain I would have to jump off a cliff to relieve it. Pray all my organs survive this crap for a few more days. It makes me into an evil fuzz-brained nasty person. The nasties have helped me deal with the doctors the last few days, though. A doctor should never put a woman on Decadron and expect good manners.
Anyway, I thought you’d all like to know this and I thank you very much for all your support.