Dr. Eeyore gets a new name
He’s now Dr. Hope, Jr.
[picapp align=”right” wrap=”true” link=”term=popsicle&iid=275874″ src=”http://view4.picapp.com/pictures.photo/image/275874/young-girl-eating-popsicle/young-girl-eating-popsicle.jpg?size=500&imageId=275874″ width=”234″ height=”352″ /]I think this is the right color for the piss and vinegar Popsicle? Thanks for all the good thoughts and prayers, I’m feeling the support. And I agree with what my sister and mom said. =)
Anyway, Dr. Eeyore redeemed himself. He’s very happy with the brain MRI. The spot that is bigger he thinks is not cancer but instead radiation necrosis from the previous treatment. That means that the tissue in that area is dying or has died, not just the tumor. There’s about a 5% chance of this happening with any treated tumor and I’ve had 12 treated, so the chances go up significantly. Since I’m a-symptomatic right now we’re just going to treat with steroids (yuk) and re-check in six weeks. At some point this thing bled, but it stopped so I dodged a bullet there. If it continues to grow — meaning tissue continues to die — they’ll likely have to cut it out physically. Yuk again, but we’re going to pray it heals on its own.
The lesion in my back can’t be re-treated with “regular” radiation without causing damage to my spine, but it can be treated with cyber knife (focused radiation). It will need five treatments and I can’t be on chemo during that time, so it’s good I’m between chemos at the moment. Meanwhile, I’ve been told not to lift more than 10 pounds or do much bending. Guess who’s not going to be vacuuming for a few weeks? Darn! We’ll figure out next week when I can go in for the cyber knife. I had some really bad pain yesterday with the spine MRI they did, so I took some Tylenol with codeine. Guess what? I’m now very allergic to codeine. This is going to be a problem because my next option for pain management before the back is treated is morphine. I’m not going to go “there.” I told him I’d go with Acupuncture and extra strength Tylenol and see if that works.
After the cyber knife I’ll have to wait about two weeks to start the new chemos, and to decide about them. I’ll be talking with the naturopath about the chemos on Monday and see what she thinks. I might also track down another oncologist for another opinion.
About the lung lesions. Dr. Hope, Jr., showed me the picture of the scans on his nice big screen computer. The lesions are all tiny tiny tiny. He said, “Meh. Not too bad.” We plotted a bit and what we think we’ll do is see how they react to the chemo. If anything’s left after that we might try cyber knife on those too. So that’s a good idea. Again, more hope.
On Tuesday morning I will be getting a biopsy of the largest lung lesion. Lung biopsies are miserable and you risk a collapsed lung, which happened to me last time, so pray against that this time, okay? I have a follow-up appointment with the oncologist on Thursday at which time we’ll look at the pathology report for the biopsy and start some chemo planning based on working around radiation and whatever the pathology report says.
As far as the pathology, let’s pray that it either shows that the cancer has switched from hormone negative to hormone positive or, better yet, that it’s actually Valley Fever — which can be responsible for many of the types of lesions I’ve been getting. Wouldn’t it be great to hear “Ooops. You actually have a fungus, not cancer”?
Funny thing: Dr. Hope, Jr. was on the phone talking with my oncologist (to whom I gave a bad time on Wednesday). They were chatting about my allergic reaction to codeine and about whether or not the oncologist thought I was having any brain symptoms. He said, “She’s more lucid than either one of us.”
So, there you go. I will continue to stock up on piss and vinegar Popsicles and keep giving ’em heck!